Treat the person, not just the joint. NICE NG193 (chronic pain) emphasises non-pharmacological approaches (exercise, psychological therapies) and careful risk\u2013benefit for medicines - particularly when pain has primary features. For secondary pain, treat the underlying drivers and stick to wider NICE guidance.<\/p>"},"borderRadius":{"id":115941395,"value":"4px"},"textColor":{"id":115941396,"value":"#{text.color}"},"backgroundColour":{"id":115941397,"value":"#0000"}}}],"properties":{"title":{"id":115940356,"value":"How should I approach pain management?"},"padding":{"id":115940360,"value":"6"},"fullWidth":{"id":115940361,"value":"0"},"fullBackgroundColor":{"id":115940362,"value":"#fff0"},"published":{"id":115940363,"value":"1"},"conditions":{"id":115940364,"value":"[]"},"questionMeta":{"id":115941391,"value":"How should I approach pain management?"},"answerMeta":{"id":115941392,"value":"
Treat the person, not just the joint. NICE NG193 (chronic pain) emphasises non-pharmacological approaches (exercise, psychological therapies) and careful risk\u2013benefit for medicines - particularly when pain has primary features. For secondary pain, treat the underlying drivers and stick to wider NICE guidance.<\/p>"},"template":{"id":115941393,"value":"expandable"}}},{"id":4678285,"type":"expandable","published":1,"size":{"x":12,"y":0},"order":2,"items":[{"id":4678325,"type":"textBlock","published":1,"size":{"x":12,"y":0},"order":0,"items":[],"properties":{"html":{"id":115941401,"value":"
Post-exertional pain and fatigue are common in EDS. Yesterday\u2019s \u2018win\u2019 can mean today\u2019s \u2018wipe-out\u2019. Plan pacing, micro-breaks, split tasks, and gradual load increases.<\/p>"},"borderRadius":{"id":115941402,"value":"4px"},"textColor":{"id":115941403,"value":"#{text.color}"},"backgroundColour":{"id":115941404,"value":"#0000"}}}],"properties":{"title":{"id":115940369,"value":"My patient crashes after activity - what is that?"},"padding":{"id":115940373,"value":"6"},"fullWidth":{"id":115940374,"value":"0"},"fullBackgroundColor":{"id":115940375,"value":"#fff0"},"published":{"id":115940376,"value":"1"},"conditions":{"id":115940377,"value":"[]"},"questionMeta":{"id":115941398,"value":"My patient crashes after activity - what is that?"},"answerMeta":{"id":115941399,"value":"
Post-exertional pain and fatigue are common in EDS. Yesterday\u2019s \u2018win\u2019 can mean today\u2019s \u2018wipe-out\u2019. Plan pacing, micro-breaks, split tasks, and gradual load increases.<\/p>"},"template":{"id":115941400,"value":"expandable"}}},{"id":4678289,"type":"expandable","published":1,"size":{"x":12,"y":0},"order":3,"items":[{"id":4678326,"type":"textBlock","published":1,"size":{"x":12,"y":0},"order":0,"items":[],"properties":{"html":{"id":115941408,"value":"
Describe function over diagnosis: what the person can do reliably (safely, acceptable standard, repeatedly, reasonable time) and the post-exertional effects. That wording mirrors PIP\u2019s legal test and prevents \u2018snapshot\u2019 misinterpretation.<\/p>"},"borderRadius":{"id":115941409,"value":"4px"},"textColor":{"id":115941410,"value":"#{text.color}"},"backgroundColour":{"id":115941411,"value":"#0000"}}}],"properties":{"title":{"id":115940395,"value":"How should I write suitable notes and letters for school, work and benefits, for EDS?"},"padding":{"id":115940399,"value":"6"},"fullWidth":{"id":115940400,"value":"0"},"fullBackgroundColor":{"id":115940401,"value":"#fff0"},"published":{"id":115940402,"value":"1"},"conditions":{"id":115940403,"value":"[]"},"questionMeta":{"id":115941405,"value":"How should I write suitable notes and letters for school, work and benefits, for EDS?"},"answerMeta":{"id":115941406,"value":"
Describe function over diagnosis: what the person can do reliably (safely, acceptable standard, repeatedly, reasonable time) and the post-exertional effects. That wording mirrors PIP\u2019s legal test and prevents \u2018snapshot\u2019 misinterpretation.<\/p>"},"template":{"id":115941407,"value":"expandable"}}},{"id":4678291,"type":"expandable","published":1,"size":{"x":12,"y":0},"order":4,"items":[{"id":4678327,"type":"textBlock","published":1,"size":{"x":12,"y":0},"order":0,"items":[],"properties":{"html":{"id":115941415,"value":"
Physio (hypermobility-aware), OT (energy management, splints, equipment), pain service, cardiology\/autonomic if PoTS, GI\/dietitian as needed, dental\/OMFS, and psychology if distress is high. <\/p>"},"borderRadius":{"id":115941416,"value":"4px"},"textColor":{"id":115941417,"value":"#{text.color}"},"backgroundColour":{"id":115941418,"value":"#0000"}}}],"properties":{"title":{"id":115940408,"value":"Who else should be on the team?"},"padding":{"id":115940412,"value":"6"},"fullWidth":{"id":115940413,"value":"0"},"fullBackgroundColor":{"id":115940414,"value":"#fff0"},"published":{"id":115940415,"value":"1"},"conditions":{"id":115940416,"value":"[]"},"questionMeta":{"id":115941412,"value":"Who else should be on the team?"},"answerMeta":{"id":115941413,"value":"
Physio (hypermobility-aware), OT (energy management, splints, equipment), pain service, cardiology\/autonomic if PoTS, GI\/dietitian as needed, dental\/OMFS, and psychology if distress is high. <\/p>"},"template":{"id":115941414,"value":"expandable"}}},{"id":4678303,"type":"banner","published":1,"size":{"x":12,"y":0},"order":6,"items":[],"properties":{"type":{"id":115940486,"value":"slim"},"title":{"id":115940487,"value":null},"copy":{"id":115940488,"value":null},"titleColor":{"id":115940489,"value":"#{banner.title.color}"},"titleBackground":{"id":115940490,"value":"#{banner.title.background.color}"},"copyColor":{"id":115940491,"value":"#{banner.copy.color}"},"copyBackground":{"id":115940492,"value":"#{banner.copy.background.color}"},"contentWidth":{"id":115940493,"value":"95%"},"textShadow":{"id":115940494,"value":"#{banner.text.shadow}"},"borderRadius":{"id":115940495,"value":"0px"},"buttonBorderRadius":{"id":115940496,"value":"#{button.border.radius}"},"buttonBackgroundColor":{"id":115940497,"value":"#{button.primary.color}"},"buttonStyle":{"id":115940498,"value":"secondary"},"buttonSize":{"id":115940499,"value":"standard"},"overlayOpacity":{"id":115940500,"value":"0"},"overlayColourStart":{"id":115940501,"value":"#000000"},"overlayColourEnd":{"id":115940502,"value":"#000000"},"overlayDirection":{"id":115940503,"value":"90"},"image":{"id":115940504,"value":"{\"src\":\"https:\\\/\\\/images.podos.io\\\/g3nntfrxjnuo1rklgs3qbsi86wgugpa2fb0fkyu5vixhuinu.png.png?w=auto&h=auto\",\"alt\":\"\"}"},"video":{"id":115940505,"value":null},"videoThumbnail":{"id":115940506,"value":null},"media":{"id":115940507,"value":"image"},"align":{"id":115940508,"value":"center"},"verticalAlignment":{"id":115940509,"value":"center"},"font":{"id":115940510,"value":"#{heading1.font}"},"actions":{"id":115940511,"value":"[{\"text\":null,\"href\":null},{\"text\":null,\"href\":null}]"},"padding":{"id":115940513,"value":"6"},"fullWidth":{"id":115940514,"value":"1"},"fullBackgroundColor":{"id":115940515,"value":"#{banner.fullBackground.color}"},"published":{"id":115940516,"value":"1"},"conditions":{"id":115940517,"value":"[]"},"template":{"id":116058496,"value":"banner"}}},{"id":4678304,"type":"textBlock","published":1,"size":{"x":12,"y":0},"order":7,"items":[],"properties":{"html":{"id":115940518,"value":"
Teemill is an ethical print-on-demand service that supplies fundraising products for the likes of Greenpeace, the RSPB, Wildlife Trusts, BBC Earth, Chris Packham and more. We have teamed up with Teemill to offer a selection of EDS-related gifts. 100% of profits<\/strong> will go into social media advertising to promote this website and educate people about life with EDS.<\/p>"},"borderRadius":{"id":115940519,"value":"#{text.border.radius}"},"textColor":{"id":115940520,"value":"#{text.color}"},"backgroundColour":{"id":115940521,"value":"#0000"},"truncateHeight":{"id":115940522,"value":null},"template":{"id":115940523,"value":"text"},"padding":{"id":115940524,"value":"6"},"fullWidth":{"id":115940525,"value":"0"},"fullBackgroundColor":{"id":115940526,"value":"#{text.fullBackground.color}"},"published":{"id":115940527,"value":"1"},"conditions":{"id":115940528,"value":"[]"}}},{"id":4680850,"type":"expandable","published":1,"size":{"x":12,"y":0},"order":5,"items":[{"id":4693453,"type":"textBlock","published":1,"size":{"x":12,"y":0},"order":0,"items":[],"properties":{"html":{"id":116408591,"value":" Take a look at the EDS Support UK GP Toolkit, which has practical primary-care pathways and tips here<\/u><\/a>.<\/p>"},"borderRadius":{"id":116408592,"value":"4px"},"textColor":{"id":116408593,"value":"#{text.color}"},"backgroundColour":{"id":116408594,"value":"#0000"}}}],"properties":{"title":{"id":116011691,"value":"Is there a GP toolkit to guide EDS diagnosis and care, especially with children?"},"padding":{"id":116011695,"value":"6"},"fullWidth":{"id":116011696,"value":"0"},"fullBackgroundColor":{"id":116011697,"value":"#fff0"},"published":{"id":116011698,"value":"1"},"conditions":{"id":116011699,"value":"[]"},"questionMeta":{"id":116408588,"value":"Is there a GP toolkit to guide EDS diagnosis and care, especially with children?"},"answerMeta":{"id":116408589,"value":" Take a look at the EDS Support UK GP Toolkit, which has practical primary-care pathways and tips here<\/u><\/a>.<\/p>"},"template":{"id":116408590,"value":"expandable"}}}],"properties":{"title":{"id":115940310,"value":"GPs"},"isStorePage":{"id":115940311,"value":"1"},"description":{"id":115940312,"value":"Advice for Dealing With The Effects of EDS"},"ogImage":{"id":115940313,"value":"https:\/\/images.podos.io\/nt59llgkba3b75nsaxvz0diimr5fxfxwmzdijqbcz2zep8ec.png.png?w=1200&h=auto"}},"labels":[],"published":1,"sitemap":1,"divisionId":413924,"edited":true}